Well, I survived! I felt better after 2 hours, knowing I would be OK. felt OK last night, my left forearm felt a little achy, but may have been from something else. Also had some congitive issues making supper, but that sometimes happens anyhow!
this morning, my heart was racing, my hands looked like I'd dipped them in water they were drenched with sweat! Feet were sweaty. ugh!
I started feeling panicky then, wondering if I should go to the ER. Then the skipped heart beats started and I don't freak out about them as much anymore since I get them a lot and haven't died yet! Within 10-20 mins I felt better. I drank some water, used the restroom and sat down for awhile.
Was this a herx?? I don't know. If it was I sure know that I am sticking with 100 mg for now!
Anyhow, I'm feeling better now, I'm going to go eat a grapefruit.
Friday, March 20, 2009
Thursday, March 19, 2009
3/19/09 I started treatment today!!
Well, after waiting over the weekend to start treatment (we had plans to go somewhere that involved walking outside last Saturday), I waited as it was sunny in OH this week and then I wussed out.
I have a fear of medications, side effects, life threatening reactions, you name it. I have never regularly taken medication in my life. My husband on the other hand isn't afraid to try anything, but he has been a type one diabetic for nearly 19 years, and has taken insulin every day since.
It hasn't been even a half hour since I took it, so I'm still shaking (physically). In a few hours I will be fine. I am proud that I did it, I started worrying that I would have to go to counseling for this medication fear.
We are hoping our son's Igenex will come back next week, if not it will be the week after. I'm very interested to see what it says. Nervous too. It would surely explain some of his behavior/fatigue, but at the same time, I would never want him to have this. I already feel so guilty knowing I may have passed this to my precious babies. Of course I didn't know I had it, but still.
Well, I will update later when I'm feeling a little better and I haven't reacted to the med for sure!
I have a fear of medications, side effects, life threatening reactions, you name it. I have never regularly taken medication in my life. My husband on the other hand isn't afraid to try anything, but he has been a type one diabetic for nearly 19 years, and has taken insulin every day since.
It hasn't been even a half hour since I took it, so I'm still shaking (physically). In a few hours I will be fine. I am proud that I did it, I started worrying that I would have to go to counseling for this medication fear.
We are hoping our son's Igenex will come back next week, if not it will be the week after. I'm very interested to see what it says. Nervous too. It would surely explain some of his behavior/fatigue, but at the same time, I would never want him to have this. I already feel so guilty knowing I may have passed this to my precious babies. Of course I didn't know I had it, but still.
Well, I will update later when I'm feeling a little better and I haven't reacted to the med for sure!
Monday, March 16, 2009
Monday, March 16. 2009
Well, I had my long awaited appointment last Thursday, Hurray!!!
I was prescribed Doxycycline 300 mg/day. I was planning to start it today, but chickened out. I started worrying that the exercised induced asthma I had in high school may have been caused by the Doxy I was on in high school for mild acne.
I just spoke with my mom and she said she is sure that I took 1 or 2 bottles total, so I am sure now that it was not causing it, since the asthma lasted for at least 8 months.
I just watch Under Our Skin again and I am ready to take it now. To think I could be feeling better soon...wow!
I've had a low grade fever for the past 4 days. 99.4 today. I used to have a lot of low grade fevers over the years, on three occassions, I didn't even realize. Twice I was at the doc's for a routine physical and was asked if I felt OK. I said yes and was told that I had a fever.
So I wonder if I often do have one and just don't realize it.
I guess too, I am really scared about having some type of psych herx, read about a woman who started beating her kids due to a psych herx! That is really scary!!!
I don't think that would happen, I hope the worst that happens is I will be achy and flu-like. Just no tachycarda/anxiety/depression. anything else I can handle!
I am cutting my hair for Locks For Love when I start treatment. It's long and usually I am to tired to deal with it, so it will be a new beginning for me!
Oh, I am also having itchiness behind both knees again. Was a little itchy on my chest today, another reason I didn't want to take the abx, if the rash got worse I wouldn't know if it was a drug reaction or not. So if it's still there tomorrow, I think it's safe to assume that if it gets worse it is probably the meds then.
Well, I need to get going....
I was prescribed Doxycycline 300 mg/day. I was planning to start it today, but chickened out. I started worrying that the exercised induced asthma I had in high school may have been caused by the Doxy I was on in high school for mild acne.
I just spoke with my mom and she said she is sure that I took 1 or 2 bottles total, so I am sure now that it was not causing it, since the asthma lasted for at least 8 months.
I just watch Under Our Skin again and I am ready to take it now. To think I could be feeling better soon...wow!
I've had a low grade fever for the past 4 days. 99.4 today. I used to have a lot of low grade fevers over the years, on three occassions, I didn't even realize. Twice I was at the doc's for a routine physical and was asked if I felt OK. I said yes and was told that I had a fever.
So I wonder if I often do have one and just don't realize it.
I guess too, I am really scared about having some type of psych herx, read about a woman who started beating her kids due to a psych herx! That is really scary!!!
I don't think that would happen, I hope the worst that happens is I will be achy and flu-like. Just no tachycarda/anxiety/depression. anything else I can handle!
I am cutting my hair for Locks For Love when I start treatment. It's long and usually I am to tired to deal with it, so it will be a new beginning for me!
Oh, I am also having itchiness behind both knees again. Was a little itchy on my chest today, another reason I didn't want to take the abx, if the rash got worse I wouldn't know if it was a drug reaction or not. So if it's still there tomorrow, I think it's safe to assume that if it gets worse it is probably the meds then.
Well, I need to get going....
Tuesday, March 10, 2009
Tuesday, March 10, 2009
Well, today has been quite a day! James usually gets our son up and he overslept, the alarm didn't go off (or so he says!) and he was very late today for school.
I went to see my alternative MD. I'd forgotten how much I love that guy! He is fantastic! Very knowledgable with the desire to continue learning constantly. He was very receptive to me going to see my new LLMD and it turns out, he may have spoken with him once!
He said he spoke with a Lyme doc in PA a few years ago about an ALS patient. Someone told him to call the LLMD, as he may be able to help.
LLMD said to put ALS patient on Tetracycline and another antibiotic, and sure enough, he improved!
He muscle tested me today and my organs are much better than they were in 2007. He was surprised how much better my adrenals were! I told him that back then, I could hardly sit still. I enjoyed the appointment today because my mind wasn't racing, and I could focus on what was going on.
He is going to be a GREAT resource for me though during this, I can tell.
He told me about some of the alternative therapies I could try that he has to maybe help.
I asked if he would like to borrow Under Our Skin (he wrote down the name of it) and he said he would love to. So I'm going to bring it with me when I see him again in 2 weeks.
I asked this doctor what strain of Babesia showed up in my electrodermal testing 1.5 years ago, it was Babesia Canis.
Which is a strain that usually affects dogs. According to Dr. Schaller, it can also affect humans.
Here is a link: http://www.babesiabook.com/articles/babesia2007update.html
Well, I'm really excited to see what my new LLMD says, even more so now that I have an alternative MD to help with all of this!
I went to see my alternative MD. I'd forgotten how much I love that guy! He is fantastic! Very knowledgable with the desire to continue learning constantly. He was very receptive to me going to see my new LLMD and it turns out, he may have spoken with him once!
He said he spoke with a Lyme doc in PA a few years ago about an ALS patient. Someone told him to call the LLMD, as he may be able to help.
LLMD said to put ALS patient on Tetracycline and another antibiotic, and sure enough, he improved!
He muscle tested me today and my organs are much better than they were in 2007. He was surprised how much better my adrenals were! I told him that back then, I could hardly sit still. I enjoyed the appointment today because my mind wasn't racing, and I could focus on what was going on.
He is going to be a GREAT resource for me though during this, I can tell.
He told me about some of the alternative therapies I could try that he has to maybe help.
I asked if he would like to borrow Under Our Skin (he wrote down the name of it) and he said he would love to. So I'm going to bring it with me when I see him again in 2 weeks.
I asked this doctor what strain of Babesia showed up in my electrodermal testing 1.5 years ago, it was Babesia Canis.
Which is a strain that usually affects dogs. According to Dr. Schaller, it can also affect humans.
Here is a link: http://www.babesiabook.com/articles/babesia2007update.html
Well, I'm really excited to see what my new LLMD says, even more so now that I have an alternative MD to help with all of this!
Monday, March 9, 2009
Monday, March 9, 2009
Well, I am relieved that I will be seeing my new LLMD in just 3 days. I am finalizing my notes/questions for him so I will be 'ready'. I am seeing my alternative MD in Ohio tomorrow. He is the first doctor to tell me I had Lyme and Babesia.
I was really tired today, may have partly been due to the time change. We got our oldest child's blood drawn today for Igenex for Lyme. It will take anywhere from 2-4 weeks to get the results. I'm nervous.
I am feeling some air hunger again, it has been 3 weeks almost since it last happened. I hope it doesn't get as awful feeling as it did last time.
Well, it's late and I need to get myself to bed!
I was really tired today, may have partly been due to the time change. We got our oldest child's blood drawn today for Igenex for Lyme. It will take anywhere from 2-4 weeks to get the results. I'm nervous.
I am feeling some air hunger again, it has been 3 weeks almost since it last happened. I hope it doesn't get as awful feeling as it did last time.
Well, it's late and I need to get myself to bed!
Tuesday, March 3, 2009
Tuesday, March 3, 2009
Well, this will be short because it's getting late and I have kids to get ready for bed. I've started to have difficulty swallowing again. This evening I nearly choked on dinner. It's so frustrating. This was one of my first major symptoms which started I believe in Dec 1996. It went away after about a year, but came back in November 2003, and did not go away until 2006 some time.
It's been intermittent since. It is so frustrating to fear eating. It feels like my throat becomes paralyzed and it just won't work.
I am very curious to see what my new LLMD thinks about this symptom.
I also have been having some more heart palps again. Ugh!!
Well, I need to get the kiddos ready for bed!
It's been intermittent since. It is so frustrating to fear eating. It feels like my throat becomes paralyzed and it just won't work.
I am very curious to see what my new LLMD thinks about this symptom.
I also have been having some more heart palps again. Ugh!!
Well, I need to get the kiddos ready for bed!
Sunday, March 1, 2009
Sunday, March 1, 2009
Well, it's been a rollar coaster ride the past few days. Just when you think certain symptoms are gone...they're Baaacckkk!
I awoke on Thursday morning with that awful feeling of anxiety, the pit in my stomach. No idea why. I thought about it later and I realized we were upon the end of the month. Much of last year, I was having flare ups of possible Bartonella, my anxiety would surge and I would have very sore legs and feet. It felt like someone either beat me with a baseball bat, or I had just exercised for hours the day before, when in fact neither instance had occurred.
Friday morning I awoke with leg pain. Mostly in the quads. A little in the calves. It was odd because usually my feet hurt too. That came on Saturday.
Swallowing trouble is beginning again. Today my legs feel pretty great, but my swallowing is very difficult. This is one of the scary symptoms that I really hate.
Why did all of this reocurr? I really don't know. I did drink quite a bit of grapefruit juice the past few days, which may have the crushed grapefruit seed in it..a potent antifungal/antibacterial substance.
I just cannot wait for my appointment next week (yes, it is NEXT WEEK!). I hope my anxiety is down then, there is nothing worse than feeling like you are dying and driving in a car in the middle of nowhere.
Plus I want to be able to focus on what my new LLMD is saying, when my mind is going 100 miles/minute, it's a little difficult.
Well.... I need to get the children bathed and hopefully be in bed early tonight, Elijah had a 103 fever most of the day yesterday and he needs his rest!
I awoke on Thursday morning with that awful feeling of anxiety, the pit in my stomach. No idea why. I thought about it later and I realized we were upon the end of the month. Much of last year, I was having flare ups of possible Bartonella, my anxiety would surge and I would have very sore legs and feet. It felt like someone either beat me with a baseball bat, or I had just exercised for hours the day before, when in fact neither instance had occurred.
Friday morning I awoke with leg pain. Mostly in the quads. A little in the calves. It was odd because usually my feet hurt too. That came on Saturday.
Swallowing trouble is beginning again. Today my legs feel pretty great, but my swallowing is very difficult. This is one of the scary symptoms that I really hate.
Why did all of this reocurr? I really don't know. I did drink quite a bit of grapefruit juice the past few days, which may have the crushed grapefruit seed in it..a potent antifungal/antibacterial substance.
I just cannot wait for my appointment next week (yes, it is NEXT WEEK!). I hope my anxiety is down then, there is nothing worse than feeling like you are dying and driving in a car in the middle of nowhere.
Plus I want to be able to focus on what my new LLMD is saying, when my mind is going 100 miles/minute, it's a little difficult.
Well.... I need to get the children bathed and hopefully be in bed early tonight, Elijah had a 103 fever most of the day yesterday and he needs his rest!
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