Wed, August 5, 2009..This is a herx that never ends...

Yes it goes on and on my friend. One day I used the laser and not knowing how I'd feel, and now this herx keeps going on and on and on...

Ugh! I'm getting sick of this one day feeling pretty decent and the next terrible! Yesterday we went to visit my brother and later a friend. We brought the EMEM machine to my brother's for him to try. Although I went outside, I was just outside with just a glass door between the rife...and about 30 ft. I could hear it for about 30 seconds until I went further outside. So I have no idea if I got 'hit' with the rife or not.

I sweated through my clothes last night. Woke up with a horrible headache today and my legs are sore today. Thankfully my parents have the kids today so that I can just rest.

Herx City!

OK, today has been a very rough day. Last night around 2 am I woke up feeling icky...still had the headache/neckache, but I felt anxious and exhausted. I got up and drank a large glass of water and sat on the couch. Our kitty, Layla jumped up with me to keep me company which I was ever grateful for.

I tried to go back to sleep about 2 hours later, but kept getting a 'shot' of adrenaline every time I exhaled. I've never had that before, it was bizarre. Also, the anxiety I had last night was uncomfortable, but not 'please take me to the ER I'm gonna die' type. I somehow fell asleep again around 5 am and woke up around 8:30. I'm tired!

I still have that adrenaline thing going on too with the breathing, but not every time I breathe, but often enough to be annoying!

Feel kind of achy today, exhausted, neck/head ache, deep bone pain in my rt fingers earlier, temp 99.4


I believe I can evaluate that the cold laser DOES kill Lyme though!

I just want to be done with this yuckiness already.

Fortunately, my husband will be done working soon so I can get some help with the kids.

I've drank a TON of water today too, trying to flush out the toxins.

Also had lack of appetite today, had 3 apples with peanut butter and a little bit of Asian Coleslaw but that's it and I'm not real hungry. Fortunately the weight that I gained in June and July has stayed on me, so it's OK if I don't eat a lot if I don't feel like it today.

August 1, 2009 Herx and Tooth Issues

Ick ick ick!

Woke up this morning with fast heartbeat. Technically I don't think it was tachycardic, but in the high 80's or 90'sm my pulse is generally in the 50's.

I tried to ignore it, told myself this happened last time, ect. Tried to deep breathe, but my body was forced to compensate for the increased heart rate.

Drank a glass of water, laid back down, heart wouldn't knock it off, so I got up and sat on the couch until it resumed back to normal.

It was 6:30 am, so no one was up with me. I did not feel a sense of dread like a panic attack, I can tell the difference between. I believe that because the body heals at night and lymph nodes are working/draining, ect...my body was overloaded with toxins and the heart was trying to get them out.

Also got the deep bone pain again laying in bed, not for as long though as yesterday.

Sigh...I'm writing so I can look back on this next week when I'm feeling much better and remember what I went through to get here and the next time I do the laser I can read it and know that it's just a herx.

No idea if I have a temp today, didn't check...didn't feel like I had one earlier, but I'm feeling more like I'm 'floating', so I probably have it back. We have lots to do around the house and I really have no energy to do it at all...trying to get our house ready to sell and also need to get a loan to consolodate debt....

Did I mention that I figured out that I have a failed root canal in my molar? Yeah...when I bite on it, feels like there is glass inside way down in the bone. The dentist in 2005 told me I needed to have it redone, showed me x-rays where there is a dark circle at end of root.

It didn't hurt then, but it's been hurting for a while now....terrified of dentists and we've already used our max amount on dentist insurance (we have $1500 per family, but when I took our girls for a routine cleaning, it was over $200 and hubby had several cavities).

I also need my wisdom teeth out...so I want to be put under 'twilight sedation'...still scared to do that but I know that an infected tooth can only hurt me in my fight against the Lyme!

Erchonia Laser Treatment #2 (July 31, 2009)

Well..it's been a WHILE since I've posted....been feeling better and more busy with living!

BTW the photo is me with my long awaited Rife Machine! Sorry about the quality of the pic!

I've had some down days...several days of air hunger last week. July 3rd had about 1 hour of myclonus (again my left side affected/head).

I planned to just get muscle tested yesterday....but hubby and chirpractor convinced me to just do another treatment.

I asked to just have the 30 seconds again (I know I'm chicken...I just don't want the anxiety back since it's SO much better even though I know I will have to go through it to get well since the bacteria create toxins that cause the anxiety).

I felt OK yesterday after doing it. This morning I was up at 5:30 am! I felt wired, but not in an anxious way.

Body temp 98.9 around noon today haven't checked since.

Had bone pain just below my left knee today, but it subsided. My throat is getting kind of sore now, my head is killing me, my neck hurts and my eyes hurt...

FUN STUFF!

But ya know....I'm OK with it...as long as the panic attacks stay away I can handle the physical pain although I really don't like bad headaches, but I'll take it any day over a panic attack!

I received my rife machine last week. I didn't use it because we were leaving for Michigan a few days later and since I have no idea how I will react to it...I just didn't do it. We got back late Tuesday night.

I think I'm going to try another Laser treatment next Monday or Tuesday unless I'm still herxing, but for a full minute this time. Then I'll see what happens.

I want to then try the EMEM5.

I think I need to go chug some lemon water and put my feet up...my body is telling me to take it easy!

Thursday, June 11, 2007

I'm getting a rife machine!!! Wahoo!!!! I spoke with the original creator of the EMEM last Friday and he is going to make one for me!!! It is not nearly as expensive as I thought. I also received Bryan Rosner's Rife machine and Lyme book, which is an amazing book!

I'm very excited for it to come which will be in about 3.5 weeks. I personally have more confidence in rife machines than in antibiotics for Late stage Lyme Disease. Plus, I am not crazy about putting chemicals into my body for years and years. I am not against antibiotics and I am sure that I will still use them at some point in my journey.

Right now, I'm still doing high raw foods and I just had my first treatment with an Erchonia cold Laser on Tuesday. My uncle is a chiropractor and I took some Borrelia nosodes to him, that I received as a gift from a very kind man who was treated by Dr. W in Germany.

My uncle asked if I would like to try the laser, as he had Lyme frequencies he could put into it.

I was nervous so he only did 30 seconds total, I wasn't sure how I would react.

Within 25 minutes I was very tired. I started craving sugar later in the day which I did give into I must admit, but I didn't overdo it or anything.

Yesterday I was a headache, neckache, I was very tired and my temp was 99.4. And I could feel the anxiety.

Herx????

I hope so!

I did find another person on LN who did not want to do antibiotics, so he did cold laser therapy with the Erchonia with total success. I've got his phone number but he said he will not be back until Sunday, so I will be calling him then!

I am feeling better today, though not great, but that's OK.

Oh, our son also was more tired (he also had the laser therapy) and he had some eye floater type things yesterday, he was afraid he was seeing the Lyme spirchetes in his eyes, poor guy!

My left shoulder/back is actually hurting too, not sure what that is all about!

Well, that's all for now...exciting exciting, huh?!

Well, I am for the rife and possibly for the laser therapy. I'm ready to get through this junk!

Thursday, May 28, 2009

Wow, it's been awhile since I posted! Let's see, the newspaper article was published. I was very happy with it, got a few requests from other people for names of my LLMD. I started getting a lot of jerking/tic type symptoms. Had a bad episode on Mother's Day at church. It was scary, I cried and while I was jerking, my 3 wonderful kids came and put their arms around me, it was so sweet. I felt my 2 year old kiss my belly while I was jerking about. They are the best kids a parent could ever dream to have!

I've had it occassionally since, last time was last Saturday, May 23. I've been trying to eat mainly raw foods for about 1.5 weeks now, I've definitely slipped up some, but doing pretty good. Last weekend, I had really really sore legs and feet. To the point that it was extremely painful to walk downstairs. I also have been getting some more numbness in my finger tips and a 'vibrating' sensation in my left leg.

I've been depressed for the past 2 weeks, some days worse than others. A couple days I basically cried all day. No particular reason. I used to do that consistantly in 1997-1998. Depression is the monster in the dark I've been fearing since. I also had more anixety this past weekend, mostly on Monday thought. Also last Fri or Sat, I noticed these small purplish/pink itchy bumps on my thighs, mostly my right thigh. I took a picture so I have evidence!

Today as I was putting on my old ripped T-shirt and running type shorts (the irony!), I had the urge to try on some jean shorts. They looked good on me. I look tired, but in other ways, perfectly healthy. No one would have a clue how miserable my existance is.

I thought to myself, "I'm 30 years old. Most 30 year old moms put on jean shorts and a cute shirt and take their kids to the park to play and talk with other people."

Instead I'm holed up in here dreading sorting clothes today. I'm switching over from winter clothes to summer and it's just overwhelming to me! It sounds silly, but I had my husband get them out of the Attic a week ago and I'm still struggling to finish it. For my defense though, I was gone Saturday and Sunday, had to go to a funeral, baby shower (which I laid down a lot of the time) and a family thing on Sunday (which I again laid down most of the time, my legs were so horribly sore).

Oh, I also had terrible insomnia Saturday night. I used to get that a lot, usually I don't have problems sleeping though now.

I ordered Utopia Silver (colloidal silver) last week that is scheduled to arrive today. I'm hoping it works. I figured that if it makes my heart crazy like the Doxy, then it is die off and I won't be afraid to restart the Doxy.

I did have some heart symptoms on Monday that were kinda scary. Then I had some yesterday, but they just felt like PVC's to me, not that those are fun, but not as scary as the skipping stuff for a 10 seconds straight. Or tachycardia.

Well, I should go, haven't eaten much today and I have people telling me that I'm starting to look bad weight wise again, so I need to eat to appease them!

Son's LLMD appointment

Well, I called last Friday, May 1 and was able to make an appointment (they had a cancellation) for Monday May 4. We drove 9 hours on Sunday and stayed in a hotel for the appointment the next day. Chicago traffic was a little rough, but not too bad for a big city. Not nearly as bad as we anticipated.

The hotel was fun, they had water slides, a sauna, hot tube, a nice wading pool for the kids with fun stuff, fitness center, nice breakfast. All for $71.99 plus tax!

Wisconsin was nice. We'd never been there. Lots of beautiful lakes.

Monday morning we were trying to hurry through breakfast, I did NOT want to be late. We met another family from Ohio as they saw James' Ohio State hat and came over to see if we were really from Ohio, or just Buckeye fans!

We made it there and there was a man standing in front of the receptionist's desk writing. I figured he was a patient and just stood 'in line'. he didn't move and the receptionist was talking on the phone seemingly ignoring him, so I sat down and waited.

Soon this 'patient' went behind the desk and made a few calls, then I realized he was the LLMD! How embarrassing! I guess I'm used to the white coat doc's, lol!

The doc was fantastic, we all liked him. There was something about him that makes you trust him and know that he is very intelligent and can actually help you. I can't really explain it.

I explained Elijah's symptoms including his complaint of heart pain. He looked at the Igenex results and said that with that 39 band present and the others that he definitely has Lyme. But he also said that Elijah may get well very quickly because he is a kid and his immune system is better than an adult's.

So that was the GREAT news!!

Then he examined Elijah, asked him where his heart hurt. Elijah pointed to his left side near the sternal area. The doctor listened to him for a while and checked his pulse, then he listened again, asking him to hold his breath at one point, then checked his pulse and finally listened yet again.

He told us to get him to a Pediatric cardiologist as soon as we can. He said that not everything is from Lyme. He said that Lyme can surely affect the heart, but his pain and fatigue may not be due to Lyme.

I could have cried, both from fear and from joy. I have thought for many years now that he may have a heart defect. The pediatricians always told me that he sounded 'fine' after listening for all of 10 seconds. yet when I listened to him, he just doesn't sound 'right'. Even our 2 year old has a better sounding heart than him, both of our girls sound the same.

Plus I knew how he didn't breathe well at birth. He had poor to no tone. Did not move, did not breathe, color was poor. He seemed to be dead. He needed to have O2 at birth and he is the only one of the kids who did not nurse for awhile after birth, maybe an hour or more??

He's complained of chest pain since he was 5 or 6 (can't remember). He actually just says that his heart hurts. And the pedi said he was fine.

I could kick myself for not demanding that someone do SOMETHING. But I listened to the doc instead of my intuition.

We have an appointment on May 18 to see a Pediatric Cardiologist. Hopefully sooner if they get a cancellation.

I am in the process of trying to get him out of school and into homeschooling, that way if he has another episode (sometimes gets tachycardia seems like), we will just take him to the ER. We all want to know if he is OK.


So while this was totally unexpected...I guess I am very thankful for this intelligent LLMD's ability to pick up on it.

So, this is where it stands right now. Will update if anything else happens.